Amyotrophic Lateral Sclerosis Assessment Questionnaire

Content
Basic information

Name: Amyotrophic Lateral Sclerosis Assessment Questionnaire

Abbreviation: ALSAQ

Versions: 3

Synonyms: 40

Description: The Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ) is a patient self-report health status PRO. The ALSAQ is specifically used to measure the subjective well-being of patients with amyotrophic lateral sclerosis (ALS, commonly referred to as Lou Gehrig’s Disease) and the occasional condition of motor neurone disease (MND). The ALSAQ is a disease-specific PRO designed and developed for use in assessing areas of importance to patients with ALS / MND, and enables the most effective assessment of these patients because it: is brief and easy to complete so benefits from an excellent response rate, is available in long form (ALSAQ-40) and short form (ALSAQ-5), has undergone rigorous testing for validity, reliability and sensitivity to change and has been shown to a robust tool for assessing ALS / MND, can be employed in surveys or clinical trials for ALS / MND patient groups, benefits from easy to interpret scores. (, https://innovation.ox.ac.uk/outcome-measures/amyotrophic-lateral-sclerosis-assessment-questionnaire-alsaq/)

Reference: Jenkinson C, Peto V, Jones G, Fitzpatrick R. Interpreting change scores on the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40). Clinical rehabilitation. 2003 Jul. PMID: 12785246.

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Temporal prevalence

Distribution in different diseases

Distribution in different versions

# version trials
1 Amyotrophic Lateral Sclerosis Assessment Questionnaire-40 33
2 Amyotrophic Lateral Sclerosis Assessment Questionnaire-5 13
3 Amyotrophic Lateral Sclerosis Assessment Questionnaire 4
Complementary instruments

# instruments trials
1 Amyotrophic Lateral Sclerosis Functional Rating Scale 46
2 Hand Held Dynamometry 7
3 Clinical Global Impression 5
4 EQ-5D 5
5 Medical Research Council Scale 5
6 Combined Assessment of Function and Survival 5
7 Amyotrophic Lateral Sclerosis Cognitive Behavioral Screen 4
8 Norris Scale 4
9 Visual Analogue Scale 3
10 EQ-VAS 3
11 Manual Muscle Testing 3
12 Caregiver Burden Inventory 2
13 Patient Global Impression 2
14 Edinburgh Cognitive and Behavioral Amyotrophic Lateral Sclerosis Screen 2
15 Fatigue Severity Scale 2
16 King's Staging Scale 2
17 Short Form Health Survey 1
18 Pittsburgh Sleep Quality Index 1
19 Goal Attainment Scale 1
20 World Health Organization Quality of Life 1
21 Montreal Cognitive Assessment 1
22 Patient Health Questionnaire 1
23 Generalized Anxiety Disorder Scale-7 1
24 Hospital Anxiety and Depression Scale 1
25 Self-Compassion Scale 1
26 Numeric Rating Scale 1
27 Quality of Life in Neurological Disorders 1
28 Minute Walk Test 1
29 Working Alliance Inventory 1
30 Nine-Hole Peg Test 1
31 Intervention Appropriateness Measure 1
32 Acceptability of Intervention Measure 1
33 Feasibility of Intervention Measure 1
34 Checklist Individual Strength Questionnaire 1
35 Maximum Voluntary Isometric Contraction 1
36 Sensory Examinations 1
37 Appel Amyotrophic Lateral Sclerosis Rating Scale 1
38 Drooling Rating Scale 1
39 Center for Neurologic Study-Bulbar Function Scale 1
40 Beck Inventory Scale 1
41 Severe Respiratory Insufficiency Questionnaire 1
42 Accurate Test of Limb Isometric Strength 1
43 Motor Unit Number Index 1
44 Amyotrophic Lateral Sclerosis Depression Inventory 1
45 Hammersmith Functional Motor Scale Expanded 1
46 Rasch-Built Overall Amyotrophic Lateral Sclerosis Disability Scale 1
47 Dyspnea-ALS-Scale 1
48 Beck Scale 1
49 Cramp Pain Scale 1
50 Muscle Cramp Scale 1
51 Weekly Cramp Diary 1
52 Amyotrophic Lateral Sclerosis Treatment Questionnaire 1
53 Digital Outcome Assessment 1
54 Penn Upper Motor Neuron Score 1
55 Revised Upper Limb Module 1